All clean and warm after her bath. Her mouth gets really dry so we have to clean it out and put vaseline on her lips. She has really pretty lips. I change the tape on her NG tube every couple days and move it to a different place on her face so it is not resting on the same spot on her cheek all the time. She has kept her temperature up for several days and did better with a bottle the day before yesterday. She doesnt move much or cry. I am hoping when we start to wean one of the seizure meds she might start to wake up more.
She had no seizures all day yesterday and only one today so far.
We are all doing great and enjoying having her so much.
Steph
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